Mainstream terrestrial broadcaster Channel 5 has aired an illuminating and provocative programme about SPS. Called “The Incredible Hulk Woman”, it features the harrowing and disturbing story of 50-year-old Birmingham mum-of-three Helen Stephens undergoing diagnosis for SPS. The programme was shown on Thursday July 11th and is available on Demand 5, Channel 5’s online service, available at Demand 5. Anyone outside of the UK, including our American visitors, can see it at BritTV.co.uk.
In our on-going campaign to raise awareness, the Charity has once again sponsored Beverley Golf Club's premier competition, the 2013 Order of Merit (Pictured above are charity founder Liz Blows and golf club captain Paul Atkinson). It launched in April and has already generated a strong enough response for the Charity to confirm it will also sponsor the event in 2014. In the inaugural year, more than 160 golfers took part in the season-long tournament which netted the charity £458. Entries are still being accepted for this year, but already more than 150 golfers have signed up and donated more than £1,000 almost £500 of which goes to the Charity. The first two events have also led to tremendous publicity in print and online. You can read about this year's event and the 2012 competition on the Order of Merit Golf Tournament Page
Video records of SPS/SMS-related topics are now online to show the world how the condition affects sufferers. Click here.
The Videos are also accessible from the "Links" menu.
If you would like us to host or link to your SPS related Videos please contact us at email@example.com.
Welcome to your refreshed and invigorated new-look SPS Support Group website. Presentation, content and navigation have been significantly improved to enhance the user experience. The site is very much a work in progress - keep checking in the coming months to see what's new, different or simply given a new lease of life. If you have any ideas, views or comments, we'd love to hear them. After all, this site is about, and for, YOU.
Apart from the ever-evolving look and feel of the site, we have further boosted our reach by the creation of a discussion Forum and, most recently, the addition of our very own Facebook page, together with a number of other innovations to help us keep pace in the ever-changing modern world. Please find time to fully explore our website and discover all it has to offer in the never-ending campaign to raise awareness of SPS at home and around the world.
Membership of the group is restricted to UK and Ireland residents only, although we’re always pleased to hear from fellow sufferers, their families and carers around the world (see Links) and our presence on Facebook means we are within reach of everyone in the global community.
You can email us, ’phone on the dedicated SPS Support Group telephone number or click the ’phone link to use Skype, and also find us on Facebook
Why not add our "SPS UK & Ireland" badge to your Facebook Picture from here:
If you have any technical issues with this site please eMail here
This site is solely for the support of those suffering from Stiff Person Syndrome (SPS). Family and friends of sufferers are also welcome to the same support. The site may be of interest to caregivers, care professionals and researchers, together with advocates for the condition and the general public.
The group and charity was set up by Liz Blows with the following aims:
(1) The relief of sickness and the protection and preservation of the health of persons affected by Stiff Person Syndrome, together with their families and carers.
(2) On-going education and awareness-raising within the medical profession and the general public of Stiff Person Syndrome.
(3) The promotion of research into the causes, effects, treatment and management of Stiff Person Syndrome.
"Stiff Man Syndrome" (SMS) was the name assigned to the condition when first identified in the 1950s by Moersch and Woltman in the USA. In recent years, in the modern world of PC, the condition has become more widely known as "Stiff Person Syndrome" (SPS). SPS does not differentiate between sex, colour, or creed, although UK evidence tends to suggest women are most at risk.
SPS is an auto-immune neurological condition. It is unique due to its lack of significant similarity to any other neurological diseases. Although rare, once observed it is quite unforgettable. However, many neurologists and GPs are still unaware of the condition. In most cases, the first symptoms are insidious and victims are often initially misdiagnosed with anxiety or depression.