Video records of SPS/SMS-related topics are now online to show the world how the condition affects sufferers. Click here.
The Videos are also accessible from the "Links" menu.
If you would like us to host or link to your SPS related Videos please contact us at admin@smssupportgroup.co.uk.
In our on-going campaign to raise awareness, the Charity has sponsored an exciting new golf tournament. Liz and Dave Blows have set up and publicised this event. You can keep up-to-date with the news of this event on the Order of Merit Golf Tournament Page. We hope this will be a succesful venture that will help people understand more about Stiff Person Syndrome.
Welcome to your refreshed and invigorated new-look SPS Support Group website. Presentation, content and navigation have been significantly improved to enhance the user experience. The site is very much a work in progress - keep checking in the coming months to see what's new, different or simply given a new lease of life. If you have any ideas, views or comments, we'd love to hear them. After all, this site is about, and for, YOU.
Apart from the ever-evolving look and feel of the site, we have further boosted our reach by the creation of a discussion Forum and, most recently, the addition of our very own Facebook page, together with a number of other innovations to help us keep pace in the ever-changing modern world. Please find time to fully explore our website and discover all it has to offer in the never-ending campaign to raise awareness of SPS at home and around the world.
Membership of the group is restricted to UK and Ireland residents only, although we’re always pleased to hear from fellow sufferers, their families and carers around the world (see Links) and our presence on Facebook means we are within reach of everyone in the global community.
You can email us, ’phone on the dedicated SPS Support Group telephone number or click the ’phone link to use Skype, and also find us on Facebook
01482 868881
Why not add our "SPS UK & Ireland" badge to your Facebook Picture from here:
If you have any technical issues with this site please eMail here
This site is solely for the support of those suffering from Stiff Person Syndrome (SPS). Family and friends of sufferers are also welcome to the same support. The site may be of interest to caregivers, care professionals and researchers, together with advocates for the condition and the general public.
The group and charity was set up by Liz Blows with the following aims:
(1) The relief of sickness and the protection and preservation of the health of persons affected by Stiff Person Syndrome, together with their families and carers.
(2) On-going education and awareness-raising within the medical profession and the general public of Stiff Person Syndrome.
(3) The promotion of research into the causes, effects, treatment and management of Stiff Person Syndrome.
"Stiff Man Syndrome" (SMS) was the name assigned to the condition when first identified in the 1950s by Moersch and Woltman in the USA. In recent years, in the modern world of PC, the condition has become more widely known as "Stiff Person Syndrome" (SPS). SPS does not differentiate between sex, colour, or creed, although UK evidence tends to suggest women are most at risk.
SPS is an auto-immune neurological condition. It is unique due to its lack of significant similarity to any other neurological diseases. Although rare, once observed it is quite unforgettable. However, many neurologists and GPs are still unaware of the condition. In most cases, the first symptoms are insidious and victims are often initially misdiagnosed with anxiety or depression.
Copyright © 2011 Stiff Man Syndrome Charity. All rights reserved.
The Stiff Man Syndrome Charity, Liz Blows (Secretary), 75 Normandy Avenue, Beverley, East Yorkshire, HU17 8PF
The Stiff Man Syndrome support group Charity is not-for-profit.
Charity Number: 1099206. Website Design by John McFall. Last Updated: 1/11/2011
